FAIR Data, FAIR Africa, FAIR World – Internationalisation of the Health Data Space

FAIR Data FAIR Africa FAIR World: The Internationalisation of the Health Data Space is a pivotal work that highlights the transformative power of FAIR (Findable, Accessible, Interoperable, Reusable) data principles in global health. Focusing on Africa, it explores how inclusive data governance and digital cooperation can drive equity, innovation, and resilience in healthcare systems. The book underscores the urgency of building interoperable, federated health data spaces that transcend borders, respecting sovereignty while enabling global collaboration. It calls for shared standards, trusted infrastructures, and African leadership in shaping the future of digital health. A timely, strategic vision for a truly FAIRer world.
Editors: Mirjam van Reisen & Munyaradzi Mawere
Year: 2025
Language: English
Publisher: Langaa RPCIG, Cameroon
ISBN: 9789956003679
Pages: 744
Dimensions: 229×152 mm
Book Chapters
- Note about the Authors and Editors by Mirjam Van Reisen & Munyaradzi Mawere
- List of Figures
- Chapter 1: FAIR Data, FAIR Africa, FAIR World: The Internationalisation of the Health Data Space by Mirjam van Reisen, Samson Yohannes Amare, Lauren Maxwell & Munyaradzi Mawere
- Chapter 2: Bridging Borders with FAIR Data: Transforming Digital Ecosystems for Maternal
Health and Public Health Surveillance in Africa by Samson Yohannes Amare - Chapter 3: Introducing Data Sovereignty Over Patient Data: Patient Data Ownership in Residence of Health Facilities in Kenya by Reginald Nalugala, Putu Hadi Purnama Jati, Samson Yohannes Amare, Maxwell Omare, Jacinta Wairimu, Charles Kahiro, William Nandwa, Seth Okeyo, Dennis Kinoti, Aliya Aktau, Albert Mulingwa & Mirjam van Reisen
- Chapter 4: GO TRAIN: A Protocol for Metadata Creation for the FAIRification of Patient Data Health Records by Aliya Aktau, Samson Yohannes Amare, Mirjam van Reisen, Getu Tadele Taye, Tesfit Gebreslassie Gebremeskel, Putu Hadi Purnama Jati & Ruduan Plug
- Chapter 5: De Novo FAIRification: A Literature Review by Zhengyu Lin
- Chapter 6: Federating Tools for FAIR Patient Data: Strengthening Maternal Health and Infectious Disease Surveillance from Clinics to Global Systems by Samson Yohannes Amare, Getu Tadele Taye, Ruduan Plug, Araya Abrha Medhanyie & Mirjam van Reisen
- Chapter 7: GO CHANGE: Adoption of FAIR-OLR Architectures to Support Insights from Patient Health Data Records in Africa by Putu Hadi Purnama Jati, Samson Yohannes Amare, Abdullahi Abubakar Kawu, William Nandwa, Getu Tadele Taye & Mirjam van Reisen
- Chapter 8: A Critical Incident Assessment of a FAIR Implementation Study on Patient Health Data in Africa by Abdullahi Abubakar Kawu, Putu Hadi Purnama Jati, Lars Schrijver, Mirjam van Reisen, Getu Tadele, Dympna O’Sullivan, & Lucy Hedermans
- Chapter 9: The Potential of Adoption of FAIR Guidelines in Digital Healthcare in Kazakhstan by Aliya Aktau
- Chapter 10: Harmonising Antenatal Care Records Across Four African Countries: A Comparative Analysis and Development of a Standardised Data Model by Samson Yohannes Amare, Liya Mamo Weldu & Tesfit Gebremeskel
- Chapter 11: Complexities of Recording and Reporting Perinatal Data: A Case Study from Namibia by Beatrix Callard
- Chapter 12: Creation of a FAIR Data Point for a Clinical Trial: the schistosome controlled human infection dataset by Putu Hadi Purnama Jati, Markus Sintong Tambah Lasroha & Mirjam van Reisen
- Chapter 13: Creation of a FAIR Data Point for a Clinical Trial: the schistosome controlled human infection dataset by Aliya Aktau, Mirjam van Reisen
- Chapter 14: Implementation of De Novo FAIRification in Relational Legacy Systems: The Case of the Electronic Medical Record System for Maternal Health in Afya.ke by Zhengyu Lin
- Chapter 15: Narratives in Public Agenda-Setting for FAIR Data and Health Data Management in Africa: Enhancing Maternal Health and Infectious Disease Outcomes by Putu Hadi Purnama Jati & Mirjam van Reisen
- Chapter 16: Testing the Cross-Border Africa Health Data Space: Monitoring, Tracking and Prevention of Mother to Child Syphilis Transmission by Samson Yohannes Amare, Liya Mamo Weldu, Araya Abrha Medhanyie, & Mirjam van Reisen
- Chapter 17: GO FAIR: Ontology Development of Health Semantics with Cultural Specificity: Traditional Health Practices using Tsebel in Conflict Zones by Bereket Godifay Kahsay, Mirjam van Reisen & Zhengyu Lin
- Chapter 18: Satu Data Indonesia and FAIR Data: Advancing Coherent Data Management in Government Administration by Intan K. Utami & Mirjam van Reisen
- Chapter 19: Integrating the Personal Health Train Methodology into Healthcare Systems for Enhanced Elderly Care in the Netherlands by Ria Landa-Figueroa & Lars Schrijver
- Chapter 20: FAIR Data Implementation for Analysis of Research Data in Human Trafficking and Migration by Kai Smits, Mehul Upase, Nimish Pandey, Senjuti Bala & Mirjam van Reisen
- Chapter 21: A Higher Education Curriculum for Cultural Competence, Representation and Social Responsibility in AI and FAIR Data Practices by Sakinat Folorunso, Francisca Oladipo, Mirjam van Reisen & Ibrahim Abdullahi